Advanced Pediatric Care Delivery
Overview
What You'll Learn
- Explore the medical complexities of children with rare/complex diagnoses and their utilization of medical technology
- Understand how advances in medical technology have changed the standard of care and clinical course for conditions previously considered “incompatible with life”
- List key clinical features of select complex conditions that are frequently seen in pediatric hospice and palliative care
- Learn about the common pre- and perinatal experiences families often have in coping with a child with congenital conditions
- Explore resources for families to seek medical treatment and support when coping with a rare illness
- Develop common language to use with families when communicating how symptom management, medical decision-making, and psychosocial stressors are similar across a range of rare pediatric diseases