Advanced Pediatric Care Delivery
This 2 CE hour, self-paced online course explores the key clinical features of rare complex conditions seen in pediatric hospice and palliative care, including chromosomal conditions such as Trisomy 13 and 18. It guides clinicians in how to help parents advocate for their child while recognizing the limits of medical interventions, and identifies medical and psychosocial resources for families of children with rare/complicated diagnoses.
Children with rare/complex diseases have numerous medical complexities and are typically highly dependent upon technology. Advances in such technology have changed the standard of care for conditions once thought to be universally fatal at birth, with some of these children now living into later childhood.
This dynamic has led to challenges in medical decision making and care planning for these children and their families. Many could benefit from the physical, psychosocial, and spiritual support that is central to palliative care. This course provides skills and strategies for understanding these complex conditions and caring for children and families affected by them.
Throughout the course, you’ll focus on skills that support young patients with rare, complex conditions and their families. You’ll explore how the same diagnosis can vary in severity and prognosis in each pediatric patient, what medical interventions are available, and effective coping strategies for families and caregivers.
Enroll in the certificate for $989. Learn more.
What You’ll Learn
- Understanding the medical complexities of children with rare/complex diagnoses and the high rate of technology dependence in this population
- Recognizing how advances in medical technology have changed the standard of care and clinical course for conditions previously considered “incompatible with life”
- Listing key clinical features of select complex conditions that are frequently seen in pediatric hospice and palliative care
- Understanding common pre- and perinatal experiences families often have in coping with a child with congenital conditions
- Identifying resources for families to seek medical treatment and support when coping with a rare illness
- Developing common language to use with families to demonstrate that symptom management, medical decision-making, and psychosocial stressors are similar across a range of rare pediatric diseases
What You’ll Earn
2 continuing education (CE) credits provided through California State University San Marcos, accredited and approved by the Western Association of Schools and Colleges (WASC).
Have a team to train? We offer special group pricing.
The Institute’s Pediatric Palliative Care curriculum was developed by expert clinicians in pediatric palliative care from leading children’s hospitals and hospice programs, with support from:
- Children’s Hospice and Palliative Care Coalition/Coalition for Compassionate Care of California
- Providence TrinityCare Hospice and Trinity KidsCare
Debra Lotstein, MD, MPH, FAAHPM, Director of the Division of Comfort and Palliative Care at Children’s Hospital Los Angeles, in both the inpatient and outpatient settings.
Susan Montgomery, RN, BSN, MA, a medical writer whose clinical career as a registered nurse included caring for children and adults in both critical care and hospice. She is the former Director of Interdisciplinary Practice at Suncoast Hospice.
Completion and Refunds
In order to complete this course and obtain a certificate, you must view the course in its entirety, correctly answer all case studies and quiz/test questions (as appropriate) and complete the evaluation. You will have 90 days to access this course from the date of purchase. No refunds are given for self-paced courses.
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